Alpha-1 Antitrypsin Deficiency Natl. Assoc.: A home page with information for those diagnosed with alpha-1 antitrypsin deficiency.
Alternative/Allopathic Medicine:
Ask Noah: part of a much larger web site (see above), this section on alternative medicine is very complete and a good starting point for those interested in finding out more about this topic
NCCAM: Sponsored by a very reliable source (The National Institutes of Health (NIH)) the National Center for Complementary and Alternative Medicine (NCCAM) conducts and supports basic and applied research and training and disseminates information on complementary and alternative medicine to practitioners and the public.
Alveolar Proteinosis: I'm convinced you can find anything on the internet! Pulmonary alveolar proteinosis is a rare disease and of course a web page dedicated to it.
Asthma-Best of the Net: A web site sponsored by the AMA featuring links to important ASTHMA related web sites.
BOOP (Bronchiolitis Obliterans Organizing Pneumonia): Dr. Epler has a good, interactive web site that helps to explain what this disease is and how it is treated.
Cancer:
Cancer Care, Inc.: A privately sponsored web page with a plethora of information for the patient with cancer.
CancerNet: Sponsored by the National Cancer Institute. Replete with information on a variety of cancers that is directed towards patients & physicians.
Cystic Fibrosis:
Cystic Fibrosis Foundation: A home page for the national association.
Cystic Fibrosis Online Resources: The CysticFibrosis Index of On-Line Resources is intended to be an exhaustive guide to all on-line web pages, news groups, FAQ's, chat rooms, and mailing lists associated with Cystic Fibrosis.
Drug Induced Lung Diseases: This is the place to get up-to-date information about drug-induced lung diseases over the Net. You may access the data either by drug names (generic, alphabetical order), or by clinical or radiological patterns of involvement.
Emphysema: The National Emphysema Foundation (NEF) has a few links and some information for patients with emphysema. Most of this info is found elsewhere.
LAM: The LAM Foundation is a non-profit organization devoted to finding a cure for lymphangioleiomyomatosis (LAM) by providing support, education, information and funding scientific research.
Lung Transplantation:
The Second Wind Lung Transplant Association, Inc has a web dedicated to those awaiting or having had a lung transplant.
TransWeb.com is a comprehensive web page with very helpful information for patients interested in lung or any other organ transplantation.
Pulmonary Fibrosis:
Dr. Epler's "What is IPF" page: a well done site, written for patients, and is reasonably up to date
Pulmonary Fibrosis Information Page: The effort of a patient, this site has basic answers to frequently asked questions.
Pulmonary Rehabilitation: still looking for a good web link.....any suggestions?
Sarcoidosis:
Dr. Epler's "What is Sarcoidosis" page: another well done site, written in a language patients can understand, and is reasonably up to date
Sarcoidosis On-line Sites and the.......
National Sarcoidosis Research Center are just two of the online informational sites for patients with sarcoidosis
Scleroderma: A rare condition that can involve the lungs...and when it does can be quite severe. This web site is dedicated to scleroderma and has specific info on the pulmonary manifestations.
Sleep Disorders:
National Center for Sleep Disorders Research: A branch of NIH, this large web site has sections geared for patients as well as clinicians and researchers.
American Sleep Disorders Association: A link to a list of links on several sleep related disorders including sleep apnea.
:
An excellent online smoking cessation program. Provides personalized
advice for smokers at every stage of quitting....from "I'll never
quit" to reformed "quitters".
Oregon Quit Line: This is an excellent resource for anyone from Oregon. There is a web site and toll free numbers for people to call
|
English line |
1-877-270-STOP (1-877-270-7867) |
|
Spanish line |
1-877-2 NO FUME (1-877-266-3863) |
|
TTY line |
1-877-777-6534 |
Other good sites to try include DrKoop.com, the American Lung Association, and the AMA, and the National Clearinghouse for Alcohol and Drug Information to name just a few.
Tuberculosis:
The Francis J. Curry National Tuberculosis Center: This web page is devoted to tuberculosis
NOAH and...
National Jewish Medical Center all have good web sites for TB.
Vocal Cord Dysfunction Syndrome
National Jewish Medical Center has a good page on this under recognized condition. National Jewish has been an early pioneer on this topic.